livelifelisa
My name is Lisa and I have been on Haemo dialysis since July 2004. I have a lovely husband called chris who is also my full time carer and an amazing daughter called Jasmine.
Livelifelisa
Created on 25/03/2011
I decided to write a blog about my life on dialysis as there is no option of a transplant so for me this is it. I want people to try and understand what myself and my family go through, not just the bad times but the good as well. Hope you enjoy my…
Category: blog Health
articles : 25
Blogrank : 0 ( learn more )
My last posts
Won't be long (hopefully)
Since I last wrote a few different things have been going on in my life. Firstly and most importantly we are still waiting for the decision on Eculizumab ( the drug I need to have a transplant), we…
Pleurisy & Parliament
Sorry not wrote for a while but quite a bit has been going on. Had a lovely christmas but did end up in hospital for a day with suspected pneumonia and pleurisy. Managed to be discharged two days…
Holidays = happy times
Well we went to Bournemouth for a week camping with friends and the weather was so so hot it was like being abroad. The dialysis unit there has 3 stations and is run by Kris and Geraldine who are a…
Hus Conference Newcastle 2011
Well im finally back from the long awaited conference on HUS and it was really interesting and even come back with some positive news. The drug ecluziumab i have spokedn about before was mentioned in…
Here's to the Future??????
So in June me and Chris will be attending the first UK patient -family conference to discuss HUS ( thats the disease that caused my kidney failure). It mentioned that there would be a discussion…
Few days in Hospital
Started to feel unwell last wednesday bit like a cold so just thought could get away with bed rest. Spent thursday, friday and saturday in bed but in the middle of the night saturday it was time to…
About time..Will it last?
Dialysed on thursday and i boy did i need a good session after the terrible previous one. I had extra fluid on and just felt 'crap' for a better word. So this session i managed the bigger needles,…
Not much to write home about
So the last few dialysis sessions haven't been the greatest. Had to keep on using the smaller (15g) needles and the pain has been terrible. Managed to get 5 sessions done for the V site button hole…
Pain & more pain ...
So saw the surgeon on Friday and he thinks the narrowing is definatley causing the pain when needling so going in for plasty now just got to wait for date to come through. Was very anxious about this…
Trying to stay positive
So its the second day of button holing and i start with a positive attitude....soon goes down hill. Manage to get the first (A) needle in but not sure if exactly same as last time so need to make a…