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livelifelisa

livelifelisa

My name is Lisa and I have been on Haemo dialysis since July 2004 due to a rare genetic disorder known as aHUS. I have an amazing daughter called Jasmine who has kept me going through this difficult journey
Associated tags : my health

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livelifelisa

livelifelisa

I decided to write a blog about my life on dialysis. Originally there was no option of a transplant due to a rare genetic disease but all this changed. I want people to try and understand what myself and my family go through, not just the bad times but the good as well. Hope you enjoy my story!!
livelifelisa livelifelisa
Articles : 38
Since : 25/03/2011

Articles to discover

Happy 1st Year Kevin!

Happy 1st Year Kevin!

I have left it way too long to create an update. As Kevin the kidney has reached his first official 1 year anniversary I thought this would be a great time to crack on with it. My first Christmas with Chris and Jasmine with no dialysis was amazing, no watching what I was drinking or eating, no having to sit there feeling unwell and unable to play w

4 month mark

Hi So the 4 month mark has been and gone and my oh my can I see a change. I have gone from attending clinic twice a week to once a week and my Eculizumab is fortnightly. Eventually If I remain stable my clinic appointments will be even less often, the Eculizumab infusions should always stay fortnightly for as long as the kidney lasts. My clinic app
Post 6 months!

Post 6 months!

I was meant to update my blog at 6 months but I have been so busy that it totally slipped my mind. Clinic has now been moved to monthly which is great news. I had to go back to the doctors about my ears but they finally prescribed me something and after a month both ears seemed to be fine. Ophthalmology appointment has been moved to January so will
Where Have I Been???

Where Have I Been???

I am so sorry it has been so long since I have updated my blog. Firstly Kevin is doing well, bloods are stable and I am keeping well. My calcium levels are still too high and i have had to have tests to see if I need the operation which I have dreaded for so long. Whilst carrying out the 6 hour test they found a lump on my thyroid and so I had to g
New Lease of Life

New Lease of Life

Saturday night and stuck at home = great time to update my blog!! Firstly I had the results back from my fine needle test and it was benign, never felt so relieved. Although I didn't actually receive any results it was just mentioned in a passing comment in transplant clinic which I thought was very insensitive. Bloods are stable although kidney fu
Coming through the other end!!

Coming through the other end!!

So its Thursday 20th March and I have just rang the Queen Elizabeth (QE) hospital in Birmingham to check they have a bed to make my way down. They have told me to come straight down and go to the dialysis ward, so far so good. Traffic isn't too bad and we get there for just after ten which is perfect as I am not expected to dialyse till about 1pm a

9 Weeks post transplant

It's now 9 weeks post transplant and I think I have felt every emotion possible. Out of these 9 weeks I have spent more time in hospital than out and I just feel so frustrated. I went to normal clinic to see the consultant and wasn't feeling fantastic but nothing to worry about. After speaking to the doctor and having bloods taken I made my way bac

Bring on 2014!

Well another year has passed and I'm still here! Managed to visit in the In laws for a couple of days, had a quiet Christmas and even managed a couple of days away for the New Year. One of the things I do not look forward too is New Years eve so this year we decided to just get away and it was the best thing I have ever done. Being by the sea and h

ALREADY???

Hello Everyone.. So I said I would start 2014 as positive as possible and this is definitely the way forward so much as happened in such a short space of time already. Last year I decided to start a project about making a mini movie about patients on dialysis who had either had a transplant, needed a transplant or unfortunately passed away before t

TRANSPLANT DATE!

Well tomorrow I go to Birmingham for my clerking ready for the transplant. I finally got my date for the 21st March. I will have my bloods taken and meet the surgeon and they have offered to show me around the ward where I will be going. I will start off on high dependency at first and then move on to a normal ward after I start to get better. To t