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I had a sensible full-time job and taught pole dance too, just because I loved it... then MS snuck up on me, so much for that trapped nerve!
Associated tags : hope, ms, ms health, medical trial, neurological, ppms


my MuSh

my MuSh

MS - PPMS, trials, changes & disability
Sonia Sonia
Articles : 19
Since : 17/04/2015
Category : Tech & Science

Articles to discover


My body is making some pretty poor decisions by my reckoning. Clearly, it cocked up good and proper with an MS diagnosis. After all, by definition an autoimmune disease means one’s own antibodies are attacking the body. I’d be really surprised if anyone diagnosed with a disease like this didn’t feel some anger about it, albeit mixed in with t

To pee, or not to pee: that is the question

Firstly, apologies to Shakespeare for messing with his words but giggling about these things is truly my best coping mechanism. Secondly, apologies that I’ve taken so long to write this but will probably be blogging like a mad woman in the coming weeks. Truthfully, between juggling the usual MS nonsense and being at the tail end of a clinical tri

Mimic fasting (Fasting Mimicking Diet) – what it’s all about and is it worth it?

Firstly, apologies this has taken so long to get round to. I’ve not been in the best place emotionally – don’t panic tho, I’m OK but sometimes the harsh realities of MS really do steal your sunshine. I have lots to say and this is good stuff though, for a couple of reasons too. I decided to give mimic fasting, or a Fasting Mimicking Diet (F

Allow me to introduce you to my MS a.k.a. MuSh #myMuSh

Let me start by saying, writing this particular blog has turned into a bit of a re-branding exercise for me. I'm not too sure my sarcasm was always understood (this condition has never actually been fun) then again, so much both mentally and physically has changed for me. MuSh is how I think about this illness and what it has done to my brain, quit

And backwards again…

~~I’m remaining staunchly optimistic whilst swapping my neurological painkillers for the ones I used to take. So I’ve halved the quantity of Pregabalin over the last few days and today is my first day on zero painkillers for a year or two. I’m all organised and the prescription is in for the Gabapentin and I’ll start in a few days and incre

The good, the bad and the ugly

This my 13th blog and it’s time I get something off my chest, it’s been a niggly irritation ever since the day I was diagnosed. So apologies to anyone that thought it’d be a light-hearted read but I have to get it out the way and then I can move onto something a bit more cheerful. It’s one of the reasons I can take a while to write my blogs

Time for plan B

The last couple of blogs I’ve written have been quite serious in nature, not to mention a little infrequent. For that I’m sorry, but to me this feels the most sobering one yet. Monday (tomorrow!) marks five years since my diagnosis and it’s not without irony that the very next day, I have an appointment with Wheelchair Services. I’m really

Perspective, some big changes

I know I’ve mentioned this before but MS has really altered my perspective on a lot of things. Even on my worst days, I keep trying to find the positives. I don’t think I’ve ever been the complete optimist but I recognise that I’ve needed to try to stay positive, just to actually cope with MS on a day to day basis and also, to keep the ‘b

Misery loves company?

The end of last year was a shocker for me, I was upset enough with Lemmy passing so suddenly and was then totally choked when I heard my Auntie had cancer. I knew it was bad because she’d been told by her consultant to go home and tell her family. My MS is being an Awkward Bitch (that’s a book by the way, a very apt description of MS) and my ri

Reality bites… but possibly a little hope?

The real push to finally write this down started after I took place in a clinical trial last year. Going through all the blood tests etc. was ok but every time they did the ECG there was a concern and my blood pressure was a little high. My BP was easy to sort out with low dose medication but I was referred to cardiology for my slightly damaged (?)